Our unexpected journey began in March of 2013 when my breast cancer was diagnosed. I was only 33 years old at time of diagnosis. I was a full-time graduate student. Our life was 'normal' and blessed. Then, out of the blue, I found a lump...and our life was turned upside down as we embarked on our unexpected journey... My partner is no longer on this journey with me, but my family and true friends have been with me for every step of it. Thank you! ♥
Monday, November 14, 2016
more karaoke fun (y'know....there's an app for that?! part 2)
If you download the app, use your ear buds - trust me! :)
Also, add me -- @kokojo2k15 -- we could make beautiful music together ♫♪♫♪♫♪
There are some cool filters for your voice too – I rarely use them, but sometimes they come in handy ;)
Remember – you’re singing with ear buds and NOT seeing the person you’re singing with in real time – it can be tricky and probably won’t sound wonderful, but it’s FUN! ;)
Also, there are ‘bad versions’ of songs, just like at times at karaoke when there are 2 or 3 versions of a song and one goes with the beat, one doesn’t…you just find the version that works best for you ;)
Here are some additional songs that I have recorded -- in no particular order
Bust a Move -- I'm the female part (of course LOL)
http://www.smule.com/recording/young-mc-bust-a-move/132758694_704796280
Jolene (acoustic) -- I'm the 2nd female voice; solo around "your beauty is..."
http://www.smule.com/recording/dolly-parton-jolene-acoustic/187544031_704807355
Skinny Love -- I'm the female, of course LOL
http://www.smule.com/recording/birdy-skinny-love/217684346_711649062
Pour Some Sugar On Me (some background noise - and a less than stellar partner, but it was fun!)
http://www.smule.com/recording/def-leppard-pour-some-sugar-on-me/766879134_714266303
You Know I'm No Good (solo)
http://www.smule.com/recording/amy-winehouse-you-know-im-no-good/581172328_494578581
I Touch Myself (solo) **
http://www.smule.com/recording/the-divinyls-i-touch-myself/581172328_494567767
** WARNING: these lyrics are rather racy and sexual (you've been warned LOL) **
Sunday, September 25, 2016
y'know....there's an app for that?!
So, maybe I'm late to the app party - having only upgraded to a smartphone capable of utilizing apps in 2013 when I purchased my Samsung Galaxy. Then, in 2015 (maybe...?), I updated to an iPhone. Sweet Baby Jesus! I have a love/hate relationship with this device. I admit it, it's mostly love, but there are quirks about the device that drive me INSANE! *lol* I hate that my ringtones can't utilize free ringtone apps like Zedge without jumping through multiple hoops to get them on and off and on again via iTunes. I hate that my memory is so fleeting (the device memory folks, but hey...if the shoe fits...and it does most days...by all means, lace that bitch up and flaunt it!).
Anyway, I have found an app that I adore (mostly) -- Smule Sing! Karaoke -- it's a virtual karaoke setting that allows you to sing with others from all over the world, or pay to be able to sing alone (or you can utilize a free trial offer - which I did!).
If you download the app, use your ear buds - trust me! :)
Also, add me -- @kokojo2k15 -- we could make beautiful music together ♫♪♫♪♫♪
There are some cool filters for your voice too – I rarely use them, but sometimes they come in handy ;)
Remember – you’re singing with ear buds and NOT seeing the person you’re singing with in real time – it can be tricky and probably won’t sound wonderful, but it’s FUN! :)
Also, there are ‘bad versions’ of songs, just like at times at karaoke when there are 2 or 3 versions of a song and one goes with the beat, one doesn’t…you just find the version you like ;)
Here are some of my songs I have recorded over the past 6 months or so -- in no particular order
If You See Him/Her --
http://www.smule.com/recording/reba-mcentire-brooks-dunn-if-you-see-him-if-you-see-her/490108650_591705936
Move It On Over --
http://www.smule.com/recording/hank-williams-sr-move-it-on-over/392504963_562246876
Then You Can Tell Me Good-Bye
http://www.smule.com/recording/then-you-can-tell-me-goodbye/392504963_562243604
Give Me One Reason (solo)
http://www.smule.com/recording/tracy-chapman-give-me-one-reason-2/581172328_504158621
Get The Party Started (solo)
http://www.smule.com/recording/pink-get-the-party-started/581172328_504146472
Come To My Window (solo)
http://www.smule.com/recording/melissa-etheridge-come-to-my-window/581172328_504136953
I've Still Got My Health (solo)
http://www.smule.com/recording/bette-midler-ive-still-got-my-health/581172328_504080622
Black Horse & Cherry Tree (solo)
http://www.smule.com/recording/k-t-tunstall-black-horse-and-the-cherry-tree/581172328_504072331
Some Kind of Wonderful (solo)
http://www.smule.com/recording/grand-funk-railroad-some-kind-of-wonderful/581172328_504053767
If I Could Turn Back Time (solo)
http://www.smule.com/recording/cher-if-i-could-turn-back-time/581172328_494592606
You Know I'm No Good (solo)
http://www.smule.com/recording/amy-winehouse-you-know-im-no-good/581172328_494578581
I Hate Myself For Loving You (solo)
http://www.smule.com/recording/joan-jett-i-hate-myself-for-loving-yu-joan-jett/581172328_494561619
I Love Rock & Roll (solo)
http://www.smule.com/recording/joan-jett-i-love-rock-n-roll/581172328_494553347
Knock Three Times (solo)
http://www.smule.com/recording/tony-orlando-knock-three-times/581172328_494547852
Nobody (solo)
http://www.smule.com/recording/sylvia-nobody/581172328_494514890
Sway with Me (duet with another female - I'm the 2nd voice - a little lower than her)
http://www.smule.com/recording/dean-martin-dean-martin-sway/226252511_494505216
Black Velvet (solo)
http://www.smule.com/recording/alannah-myles-black-velvet/581172328_494499155
Dreams (solo + video = I was being a little goofy)
http://www.smule.com/recording/fleetwood-mac-dreams/581172328_494484403
Let's Make Love (duet with male -- I'm obviously the female voice "Faith")
http://www.smule.com/recording/faith-hill-tim-mcgraw-lets-make-love/588477637_494472527
Stay (solo)
http://www.smule.com/recording/sugarland-stay/215947734_485930724
Keep Your Hands to Yourself (duet with male - I'm obviously the female voice)
http://www.smule.com/recording/keep-your-hands-to-yourself/132758694_485916724
Cake By The Ocean (duet with the group - being silly - way out of my comfort zone LOL)
http://www.smule.com/recording/dnce-cake-by-the-ocean/649527559_485911320
Girl Crush (duet with another female -- I'm the 2nd female voice to come in to the song)
http://www.smule.com/recording/little-big-town-girl-crush/187544031_485900405
You Oughta Know (duet with another female - I'm the 2nd female voice to come in around "you seem very well...")
http://www.smule.com/recording/alanis-morissette-you-oughta-know/292463746_485893891
Hand In My Pocket (duet with another female – I come in 2nd “I’m High but I’m Grounded”…)
http://www.smule.com/recording/alanis-morissette-hand-in-my-pocket/292463746_485885282
Seven Spanish Angels (duet with male)
http://www.smule.com/recording/willie-nelson-seven-spanish-angels/83886271_326744469
Tuesday, February 2, 2016
'dem bones, 'dem bones...
Sunday, March 22, 2015
Time keeps on slippin'...into the future...
I meant to post this yesterday, but I had not fully processed my feelings (and still haven't fully, but somewhat).
Two years ago on March 21, I heard one of the most terrifying, horrifying and heartbreaking phrases from a Doctor's mouth. "You have Cancer."
My mind raced, my heart sank and I did my best to keep my composure while the doctor offered information and what was to be expected moving forward. It felt like I was outside of my body, watching it all unfold from an outsider's perspective. My partner (at the time) had begrudgingly joined me at this appointment...after much begging and pleading...as I had a gut feeling that I wasn't going to receive good news regarding my mammogram and ultrasound just days earlier. My partner offered very little solice...at the time, I chalked it up to us both being numb. I managed to keep (most) of my composure as I called my parents and my grandparents with this dreaded news. My partner left for work, and I was left home alone, miles away from family, to come to grips with reality. I wanted to scream, I wanted to cry, I wanted to break shit, I wanted to run away from this reality, I wanted to just mentally shut down and check out, I wanted to run down the street like my hair was on fire, screaming at the top of my lungs. My partner never did have a reaction to this news, not in my presence at least, though I heard later about the emotional outpouring to coworkers.
I was deeply emotional...running the gamut of worried, sad, confused, upset, angry, pissed off, terrified...the emotional roller coaster lasted for some time, but was perhaps most intense when I first faced the daunting news of my diagnosis. It was then that I faced my mortality and my darkest fears.
Of course, my mind reeled with thoughts of "what if...?"
What if....?
* I'm not strong enough to make it through this
* I become unable to have children from the treatments and drugs
* I go through this and it comes back
* I end up hospitalized with complications
* I die from this
I also faced the thought of what could have happened had I not found the lump when I did. I had already formed a large, aggressive and invasive cancerous tumor. It hadn't been long since my last gyno appointment and neither my Dr nor myself had felt it at that point. If it had gone undetected, could it have spread through my body and killed me?
I didn't have health insurance and the red tape in health care and assistance for those that truly NEED it is a freaking nightmare. I'm STILL dealing with it all...ugh.
A LOT has happened in the past two years...some good, some bad, some life shattering, some funny beyond words.
I have LOST my hair (I had a love hate relationship with it my entire life - which many people with naturally curly hair can relate to...but I truly miss it...even have hair envy at times...), GAINED perspective, LOST my mind (no, seriously), GAINED incredible patience, LOST my partner (some people cannot see beyond themselves), GAINED weight (damn drug side effects), LOST weight (slow and torturous), GAINED a few more scars, LOST some sensation in parts of my body, GAINED daily medicine regimens, LOST some mobility in some joints and parts of my body, GAINED some aches and pains, LOST some pieces of myself, GAINED many menopausal symptoms (hot flashes, night sweats, irritability, etc), LOST a few ("so called") friends and GAINED a whole new appreciation of my TRUE friends and the love of family.
I have also moved from Ohio to Pennsylvania. While it was a move I had been hoping to make at some point in the future, the circumstances behind it (& even currently) were/are quite crap-tastic and complicated.
I know by looking at the calendar (and my ever multiplying gray hairs) that two years have since passed...but I'll be damned if I don't feel as if my life is still on a perpetual pause. One minute I'm a graduate student studying for midterms and scheduling group study sessions...the next I'm a cancer patient studying my diagnosis and scheduling surgeries and treatment plans. *sigh*
I realize that terrible things happen to people all over the world every day...I also realize that I can't live the rest of my life just waiting for cancer to reoccur...but, how do you push past that fear?
{note: one of my dear friends was diagnosed shortly after me, with a different type of cancer, and we commiserated and supported each other through our journeys...she recently received news that her cancer returned...absolutely terrifying and crushing news...she appears incredibly optimistic and zen about it. I pray for her daily. This news made me stop and face my own fear of reoccurrence yet again.}
I'm currently overdue for both my pet scan (as of 2/2015) and my mammogram (as of 3/17/15). I know that both of those tests, combined with some other blood panels and Dr visits (oncologist/neuro followup/cardiologist followup/lymph followup) would help to shed light on various recent physical occurrences...however, I have not yet established myself with local doctors. Trust me, it is not for lack of trying! I have had one hell of a time getting any information requested from my previous county of residence and then relaying it to my new one AND getting to speak with a live person in a timely manner is damn near impossible. I was told that my paperwork (mailed in February) was never received and that I had to start over again! Seeing as this paperwork is highly sensitive and personal information I am extremely concerned with its whereabouts...I have called the man that I had previously been communicating with regarding my application ever day for over a week...each time I reach voicemail (despite choosing a different menu option) and each time I leave a message and wait...and each time another day passes without communication and any type of response. Oh, the irony that one of the most constant and consistent forces in my life has been and continues to be red tape/bureaucratic bullshit, fighting for healthcare coverage and prescription coverage.
Why, oh why, can't THAT change in my favor?!
Friday, March 20, 2015
A LONG time comin'...
Friday, November 21, 2014
...it certainly is...
♥ xo ♥